Research findings, 'The context and approach for the California newborn screening short- and long-term follow-up data system: Preliminary findings,' are discussed in a new report. According to recent research from the United States, 'State newborn screening programs are designed to prevent morbidity and mortality from hereditary disorders through early detection and ongoing disease management. These programs have traditionally focused on short-term follow-up.'
'However, capturing data on the long-term follow-up process is emerging as a new priority. Long-term follow-up data can be used to assess the accessibility, continuity, and quality of care provided to these children. The California Newborn Screening Program uses a Web-based data collection system for short-and long-term follow-up,' wrote L. Feuchtbaum and colleagues.
The researchers concluded: 'This article provides a description of the follow-up data collection system in addition to preliminary findings to demonstrate the efficacy of the California data collection approach.'
Feuchtbaum and colleagues published their study in Genetics In Medicine (The context and approach for the California newborn screening short- and long-term follow-up data system: Preliminary findings. Genetics In Medicine, 2010;12(12 Suppl):S242-50).
For additional information, contact L. Feuchtbaum, Genetic Disease Screening Program, California Dept. of Public Health, Richmond, California 94804 USA.
Keywords: City:Richmond, State:California, Country:United States, Genetics, Pediatrics.
This article was prepared by Pediatrics Week editors from staff and other reports. Copyright 2011, Pediatrics Week via NewsRx.com.
